PPI and PRP chronology
Below is a chronology of PPI (Patient and Public Involvement) and PRP (Patient Research Partner) activities over the last 15 years, highlighting the wide network and range of stakeholders I've collaborated with
| Year | Activity |
|---|---|
| Feb 2018 | EU Parliament, Brussels - Member's Interest Group Rheumatology |
| May 2018 | Merck, Geneva - Patient Expert Presentation |
| June 2018 | EULAR Congress, Amsterdam - Patient-Doctor Communication |
| June 2018 | Dublin, Ireland - Launch of the HSE Rheumatology Model of Care |
| October 2021 | Galapagos, Online - Sleep and Chronic Disease Podcast |
| March 2022 | Fresenius Kabi - FRAME Rome |
| March 2023 | Fresenius Kabi - FRAME Madrid |
| June 2023 | EULAR Congress, Milan - Apps to Monitor Health and Wellbeing |
| June 2023 | EULAR Congress, Milan - Dealing with an Inflammatory Arthritis Diagnosis |
| September 2023 | Fresenius Kabi - FRAME Madrid |
| October 2023 | Dublin, Ireland - Living with Arthritis at all Stages for World Arthritis Day |
| January 2024 | ESOR Study Group with Yeliz Prior (Uni. of Salford) Developing Course for Shared Decision Making |
| January 2024 | EULAR Study Work and RMDs - Yvonne Codd (TCD, Dublin) |
| June 2026 | Lancet Rheumatology Commission on Reproductive Health and Family Planning in Immune-Mediated Long-Term Conditions |
| 2020 | COVAD Study The COVAD study demonstrates the potential of online platforms for conducting large- scale, patient- focused research and underscores the importance of integrating patient perspective into clinical care. what is it? Jan 2024 https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/1756-185X.15161?msockid=03e6523acfd56c45090e4543cef36d31 May 2024 https://onlinelibrary.wiley.com/doi/full/10.1111/1756-185X.15161?msockid=03e6523acfd56c45090e4543cef36d31 |
| 2021 | STREAM Study |
| March 2026 | SPECS-OA |
| 2025 | Dublin, Ireland - Work and Arthritis with Yvonne Codd (TCD, Dublin |
| 2025 | Dublin, Ireland - Parenting and Arthritis with Cathy White (PhD Candidate, TCD, Dublin) |